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Table 2 Sample questions for the structured interview of a subset of families and children

From: The drooling reduction intervention trial (DRI): a single blind trial comparing the efficacy of glycopyrronium and hyoscine on drooling in children with neurodisability

You are taking medicine for your drooling - it is the patch behind your ear or the medicine you take

Do you think the medicine worked?

yes/no/not sure

What was your drooling like before you took the medicine?

very bad/bad/OK/good/very good

What is your drooling like now?

very bad/bad/OK/good/very good

Has the medicine helped you?

yes/no/not sure

If yes, how has it helped you? Symbols for face not sore, dry chin, dry clothes, friends, happy.

Have you felt unwell/poorly (word used by family) whilst taking the medicine?

yes/no/not sure

If unwell:

Which part of you has felt unwell? Cartoon of a child, child points to relevant body parts or interviewer points to each part of the body.

How unwell have you felt?

OK/bad/very bad

Did you feel unwell like that before you took the medicine?

yes/no/not sure

Did you want to stop taking the medicine?

yes/no/not sure

Are you still feeling unwell?

yes/no/not sure

Did you tell your mum/dad about this?

yes/no/not sure

If no: ‘I think I should tell them and we can talk about how to help you get better’

If a friend needed help for their drooling, should they take the medicine you have tried?

yes/no/not sure