| |
Specific measures for gastrointestinal disease
|
Cancer specific measures
|
Generic measures
| |
|---|
|
PRO domain
|
EQOL
|
FACT-E
|
GERD-HRQL
|
GIQLI
|
DAUGS 32
|
LAGS
|
QLQ-OG25
|
QLQ-OES18
|
QLQ-OES24
|
Adapted RSCLa
|
Adapted RSCLb
|
RSCL
|
PNPC
|
QLQ-C30
|
QLQ-C36
|
WOCS
|
MOS Sf-20
|
PAIS
|
POMS
|
SF 36
|
HADS
|
Frequency assessed in PROMs (total number of items)
|
|
Disease specific
| | | | | | | | | | | | | | | | | | | | | | |
|
Pain/pain-related swallowing
| |
3
|
1
|
1
|
2
|
1
|
3
|
3
|
3
| |
5
|
6
|
1
|
2
|
1
| |
1
| | |
2
| |
15 (35)
|
|
Appetite/eating/taste
|
4
|
3
| |
4
|
5
|
1
|
6
|
4
|
4
| |
3
|
1
|
1
|
1
|
1
| | | | | | |
13 (38)
|
|
Fatigue
| |
1
| |
1
|
2
|
1
| | | | |
1
|
2
|
1
|
3
|
3
| | | |
15
|
4
| |
11 (34)
|
|
Dysphagia/swallowing saliva
|
1
|
4
|
1
|
1
|
2
|
1
|
4
|
4
|
4
| |
2
| |
1
| | | | | | | | |
11 (25)
|
|
Regurgitation/vomiting
|
1
| | |
1
|
5
|
1
|
1
|
1
|
1
| |
2
| |
1
|
1
|
1
| | | | | | |
11 (16)
|
|
Reflux/heartburn
|
1
| |
6
|
1
|
2
|
1
|
1
|
1
|
1
| |
1
|
1
| | | | | | | | | |
10 (16)
|
|
Nausea
| |
1
| |
1
|
1
|
1
| | | | |
1
|
1
|
1
|
1
|
1
| | | | | | |
9 (9)
|
|
Belching/bloating/gas
|
1
| |
1
|
4
|
3
|
1
| | |
1
| |
1
| | | | | | | | | | |
7 (12)
|
|
Diarrhoea/frequent bowel movements
| | | |
5
|
2
|
1
| | | | |
1
| |
1
|
1
|
1
| | | | | | |
7 (12)
|
|
Cough
| |
1
| | | |
1
|
1
|
1
|
1
| |
1
| |
1
| | | | | | | | |
7 (7)
|
|
Choking
| |
1
| | |
1
|
1
|
1
|
1
|
1
| |
1
| | | | | | | | | | |
7 (7)
|
|
Dry mouth
| |
1
| | | | |
1
|
1
|
1
| |
1
|
1
| | | | | | | | | |
6 (6)
|
|
Breathing
| |
1
| | | | | | | | |
1
|
1
|
1
|
1
|
1
| | | | | | |
6 (6)
|
|
Weight
|
1
|
1
| | |
1
|
1
|
1
| |
1
| | | | | | | | | | | | |
6 (6)
|
|
Communication/speech difficulties
| |
2
| | | | |
1
|
1
|
1
| |
1
| | | | | | | | | | |
5 (6)
|
|
Eating - social impact
|
1
|
1
| | | | |
1
|
1
|
1
| | | | | | | | | | | | |
5 (5)
|
|
Sexual function
| | | |
1
| | | | | | | |
1
|
1
| | | | |
6
| | | |
4 (9)
|
|
Constipation
| | | |
1
| | | | | | | | |
1
|
1
|
1
| | | | | | |
4 (4)
|
|
Hair loss
| | | | | | |
1
| |
1
| | |
1
|
1
| | | | | | | | |
4 (4)
|
|
Body image
| | | |
1
| | |
1
| | | | | |
1
| | | | |
1
| | | |
4 (4)
|
|
Dizziness/dumping
| | | | |
5
|
2
| | | | | | |
1
| | | | | | | | |
3 (8)
|
|
Generic
| | | | | | | | | | | | | | | | | | | | | | |
|
Emotional function
|
2
|
8
| |
6
| |
3
|
2
| |
3
|
7
|
5
|
7
|
19
|
4
|
8
|
4
|
5
|
6
|
43
|
5
|
14
|
18 (151)
|
|
Role physical/ADLs
|
2
|
2
|
1
|
2
| | | | | |
8
|
8
|
8
|
9
|
3
|
4
| |
3
|
4
| |
5
| |
13 (59)
|
|
Physical function
| |
2
| |
3
|
1
| | | | |
25
| |
3
|
4
|
4
|
6
| |
5
|
1
| |
9
| |
11 (63)
|
|
Social function
|
1
|
7
| |
1
| | | | | | | | |
19
|
2
|
2
| |
1
|
17
| |
2
| |
9 (52)
|
|
Generic health
| |
1
| |
1
| | | | | | | | | |
1
|
1
| |
5
|
2
| |
6
| |
7 (17)
|
|
Sleep
| |
1
| |
1
| |
1
| | | | | |
1
|
1
|
1
|
1
| | | | | | |
7 (7)
|
|
Global QOL
| |
1
| | | | | | | |
1
|
4
| |
1
|
1
|
2
| | | | | | |
6 (10)
|
|
Cognition
| | | | | | | | | | | |
1
|
3
|
2
|
1
| | | |
7
| | |
5 (14)
|
|
Role emotional
| |
2
| | | | | | | | | | |
4
| | | | |
2
| |
3
| |
4 (11)
|
|
Financial issues
| | | | | | | | | | | | |
5
|
1
|
1
| | |
1
| | | |
4 (8)
|
|
Spiritual issues
| | | | | | | | | | | | |
2
| | | | | | | | |
1 (2)
|
-
aAdapted RSCL - de Boer study.
-
bAdapted RCSL - van Knippenberg study
- ADLs: Activities of daily life.
