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Table 4 Categorised PRO health domains showing number of items in existing PROMs assessing each domain

From: Developing core outcomes sets: methods for identifying and including patient-reported outcomes (PROs)

  Specific measures for gastrointestinal disease Cancer specific measures Generic measures  
PRO domain EQOL FACT-E GERD-HRQL GIQLI DAUGS 32 LAGS QLQ-OG25 QLQ-OES18 QLQ-OES24 Adapted RSCLa Adapted RSCLb RSCL PNPC QLQ-C30 QLQ-C36 WOCS MOS Sf-20 PAIS POMS SF 36 HADS Frequency assessed in PROMs (total number of items)
Disease specific                       
Pain/pain-related swallowing   3 1 1 2 1 3 3 3   5 6 1 2 1   1    2   15 (35)
Appetite/eating/taste 4 3   4 5 1 6 4 4   3 1 1 1 1        13 (38)
Fatigue   1   1 2 1      1 2 1 3 3     15 4   11 (34)
Dysphagia/swallowing saliva 1 4 1 1 2 1 4 4 4   2   1          11 (25)
Regurgitation/vomiting 1    1 5 1 1 1 1   2   1 1 1        11 (16)
Reflux/heartburn 1   6 1 2 1 1 1 1   1 1           10 (16)
Nausea   1   1 1 1      1 1 1 1 1        9 (9)
Belching/bloating/gas 1   1 4 3 1    1   1            7 (12)
Diarrhoea/frequent bowel movements     5 2 1      1   1 1 1        7 (12)
Cough   1     1 1 1 1   1   1          7 (7)
Choking   1    1 1 1 1 1   1            7 (7)
Dry mouth   1      1 1 1   1 1           6 (6)
Breathing   1          1 1 1 1 1        6 (6)
Weight 1 1    1 1 1   1              6 (6)
Communication/speech difficulties   2      1 1 1   1            5 (6)
Eating - social impact 1 1      1 1 1              5 (5)
Sexual function     1         1 1      6     4 (9)
Constipation     1          1 1 1        4 (4)
Hair loss        1   1    1 1          4 (4)
Body image     1    1       1      1     4 (4)
Dizziness/dumping      5 2        1          3 (8)
Generic                       
Emotional function 2 8   6   3 2   3 7 5 7 19 4 8 4 5 6 43 5 14 18 (151)
Role physical/ADLs 2 2 1 2       8 8 8 9 3 4   3 4   5   13 (59)
Physical function   2   3 1      25   3 4 4 6   5 1   9   11 (63)
Social function 1 7   1          19 2 2   1 17   2   9 (52)
Generic health   1   1           1 1   5 2   6   7 (17)
Sleep   1   1   1       1 1 1 1        7 (7)
Global QOL   1         1 4   1 1 2        6 (10)
Cognition             1 3 2 1     7    5 (14)
Role emotional   2            4      2   3   4 (11)
Financial issues              5 1 1    1     4 (8)
Spiritual issues              2          1 (2)
  1. aAdapted RSCL - de Boer study.
  2. bAdapted RCSL - van Knippenberg study
  3. ADLs: Activities of daily life.
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