Domain to be measured | Measure(s) |
---|---|
Measures of participation and health | |
Individualized quality of life | Schedule for the evaluation of individual quality of life-direct weighting (SEIQoL-DW)[21] |
Self-efficacy | Lorig self-efficacy scale[22] |
Health service use | Client Services Receipt Inventory[23] |
Health utility measures | EQ-5D-5 L[24] |
ICECAP-A[25] | |
Measures of activity | |
Functional activity | Physical performance test (PPT)[26] |
Usual pattern of mobility | Life space assessment[27] |
Physical activity assessment | International Physical Activity Questionnaire (Short Form)[28] |
Walking ability | Six-minute walk test[29] |
Timed Up and Go Test[30] | |
Self-reported falls | Frequency, circumstance and severity of any falls[31] |
Measures of body function | |
Disease-specific clinical measure of motor impairment | Unified Huntington Disease Rating Scale (UHDRS) modified motor scale[20] |
Measure of cognitive impairment | Symbol Digit Modality Test (SDMT)[32] |
Verbal category fluency[33] | |
Behavioral outcomes | |
Measures of autonomy/supportive interactions | PAS Healthcare Climate Questionnaire[34] |