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Table 2 Outcome measures

From: Supporting physical activity engagement in people with Huntington’s disease (ENGAGE-HD): study protocol for a randomized controlled feasibility trial

Domain to be measured

Measure(s)

Measures of participation and health

Individualized quality of life

Schedule for the evaluation of individual quality of life-direct weighting (SEIQoL-DW)[21]

Self-efficacy

Lorig self-efficacy scale[22]

Health service use

Client Services Receipt Inventory[23]

Health utility measures

EQ-5D-5 L[24]

 

ICECAP-A[25]

Measures of activity

Functional activity

Physical performance test (PPT)[26]

Usual pattern of mobility

Life space assessment[27]

Physical activity assessment

International Physical Activity Questionnaire (Short Form)[28]

Walking ability

Six-minute walk test[29]

 

Timed Up and Go Test[30]

Self-reported falls

Frequency, circumstance and severity of any falls[31]

Measures of body function

Disease-specific clinical measure of motor impairment

Unified Huntington Disease Rating Scale (UHDRS) modified motor scale[20]

Measure of cognitive impairment

Symbol Digit Modality Test (SDMT)[32]

 

Verbal category fluency[33]

Behavioral outcomes

Measures of autonomy/supportive interactions

PAS Healthcare Climate Questionnaire[34]

  1. PAS, Perceived Autonomy Support; ICECAP, ICEpop CAPability measure for Adults.