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Table 1 Descriptive variables and their definitions

From: Detailed statistical analysis plan for the Danish Palliative Care Trial (DanPaCT)

Variable Definition Assessed by/assessed from
Baseline variables   
Sex   The Danish Civil Registration System (called CPR in Danish) which depict sex and age
Age   The Danish Civil Registration System (called CPR in Danish) which depict sex and age
Cancer   Project nurse
Receiving treatment (yes/no) Whether the patient is receiving active anti-neoplastic treatment at the time of randomization Project nurse
Education   Questionnaire, self-assessment
WHO performance score   Project nurse
Time since diagnosed with cancer stage four Assessment based on the TNM (tumor, node, metastasis) system. First time it is documented that the patient has stage four cancer. Staging is updated, so a patient diagnosed with stage two and developing distant metastases at a later time is considered as having stage four when the metastases are discovered Doctors or students with at least a bachelor degree in medicine
Time since diagnosed with primary cancer   Project nurse
Study descriptive variables   
Center There are six centers included in the study  
Primary need Each patient is randomized for one out of seven potential primary needs (please see article text) Questionnaire, self-assessment
Use of health care services outside the hospital Use of for example, psychologist, physiotherapist or other health care services outside the hospital in the eight-week intervention period Questionnaire, self-assessment
Cross-over Patients from the control group receiving at least one physical contact with specialized palliative care (SPC) within the study period Students
Protocol violations Patients from the intervention group not receiving at least one physical contact with the SPC within the study period Students