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Table 1 Components of the pain education intervention

From: An educational intervention to reduce pain and improve pain management for Malawian people living with HIV/AIDS and their family carers: study protocol for a randomised controlled trial

Topics to be covered

Content

Introductions

Participants (patient and carer) welcomed

Introductions and clarifications as required

Leaflet provided and participants given time to read through

Overview of pain in HIV/AIDS

Pain defined in relation to HIV/AIDS

Possible causes of pain in HIV/AIDS discussed

Characteristics of pain relating to HIV/AIDS

Beliefs and myths about pain in HIV/AIDS

Participants given opportunity to share beliefs about pain in relation to HIV/AIDS

Where appropriate misconceptions dispelled

Beliefs and myths about pain medication

Ask the participants’ beliefs about use of pain medication

Summarise and dispel misconceptions as required about pain medication

Assessment of pain in HIV/AIDS

Demonstrate with the help of body diagrams how to locate and describe pain

Demonstrate use of pain assessment tools to rate and record pain

Demonstrate with pain diagrams how to classify pain

Explore type of pain experienced and strategies used to manage pain

Discuss ways in which pain may be managed more effectively

Pharmacological management of pain

Demonstrate, using the WHO analgesic ladder, how pain is managed with medications

Give examples of available drugs used on the WHO ladder

Discuss most effective timing of pain medication

Non-pharmacological management of pain

Identify what non-pharmacological interventions participants are aware of and use

Practical demonstrations on use of non-pharmacological interventions as appropriate

Other items to be covered

Participants given further opportunity to clarify any of the points discussed

Participants encouraged to re-read the leaflet after the end of the face-to-face meeting and refer to it whenever the patient experiences pain

Advise participants to ask for clarification about the leaflet and its contents by sending a missed call to KN who will then return the call

Routine follow-up call at two weeks