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Table 2 Family CARE Study response rates for the three-stage recruitment process of cancer cases and their at-risk relatives, 2009 to 2011.

From: Examining the challenges of family recruitment to behavioral intervention trials: factors associated with participation and enrollment in a multi-state colonoscopy intervention trial

 

Total selected

Ineligible

Eligible

Consented

Did not consent

Response rate

Stage 1 Registry recruitment

      

California

2,979

226

2,753

2,391

362

86.9%

Colorado

1,133

150

983

335

648

34.1%

Idaho

634

33

601

137

464

22.8%

New Mexico

1,029

3

1,026

79

947

7.7%

Utah

2,543

329

2,214

1,004

1,210

45.3%

Other registry sourcesa

N/A

N/A

245

61

184

24.9%

Stage 2 Family contact form response b

4,139c

256

3,883

2,043

1,840

52.6%

Stage 3 At-risk relative study enrollment

2,435

1,394

1,041d

481

560

60.4%e

  1. aOf the other nonstate registry sources utilized in the Family CARE study, only Intermountain Healthcare and the New Mexico Cancer Genetics Network (CGN) contacted cases to obtain consent for Family CARE study contact. Other nonstate registries (Utah CGN, Huntsman Cancer Registry, and Tissue Resource and Applications Core (TRAC)) provided case information directly to Family CARE study staff in accordance with individual registry protocols. Owing to the diverse nature of case ascertainment and consent, it is not possible to identify which of the initially selected cases were counted as ineligible. Thus, these numbers are not included.bFor the Family Contact Form (FCF), ‘consented’ means that the case returned the FCF, with or without names of eligible relatives, while ‘did not consent’ means that the case either did not return the FCF form or refused to participate. cIndividuals who were contacted directly by Family CARE staff (n = 132) rather than by participating registries, are included in this number.dThis number refers to response rate eligibility (differentiated from study eligibility in Additional file 2).eResponse rates for at-risk relatives were calculated using the AAPOR RR3 formula: The basis for our estimates was calculated from the response rate of relatives known to be eligible.