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Table 1 State registry case recruitment protocol for the Family CARE Study, 2009 to 2011

From: Examining the challenges of family recruitment to behavioral intervention trials: factors associated with participation and enrollment in a multi-state colonoscopy intervention trial

Protocol

Case diagnosis years

Physician permission typea

Case consent type

Target relative risk groupb

Contact intensityc

California Cancer Registry

2005 to 2008

None

Passive

Group 1

Low

Cancer Data Registry of Idaho

1971 to 2007

Passive

Written only

Group 1, Group 2

High

Colorado Cancer Registry

2003 to 2009

Passive

Written only

Group 1

Moderate

New Mexico Tumor Registry

2000 to 2009

Passive

Written only

Group 1

Low

Utah Cancer Registry

1971 to 2008

None

Phone or written

Group 1, Group 2

High

  1. aPassive physician notification provides physicians a time-based opt-out period in which physicians can refuse patient contact for a study.bGroup 1: one first-degree relative (FDR) of an individual diagnosed with colorectal cancer (CRC) between 40 and 60 years of age. Group 2: one FDR with a relative diagnosed with CRC at any age AND one additional FDR or second-degree relative with a relative diagnosed with CRC at any age (CRC cases must be related to one another).cHigh: both phone and mail follow-up. Moderate: at least one mail follow-up. Low: no follow-up.