Participant | Outcome measure | Instrument |
---|---|---|
Person with Parkinson's | Parkinson's disability/general activities | Self Assessment Parkinson's Disease Disability Scale [46] (PRIMARY OUTCOME) |
 | Parkinson's specific | Parkinson's Disease Questionnaire [47] |
 |  | Non Motor Symptom Questionnaire [48] |
 | Mobility | Posture and gait items from the Unified Parkinson's Disease Rating Scale [49] |
 |  | Timed up and go [50] |
 | Falls | Self report |
 | Speech | Single speech item from the Unified Parkinson's Disease Rating Scale [49] |
 |  | Abridged Emerson and Enderby Screening Assessment Rating Scale [51] |
 |  | Frenchay Dysarthria Summary [52] |
 |  | |
 | Pain | Visual analogue scale [53] |
 | Generic health related quality of life/QALYs | Euro Qol 5D, with utility index for calculation of quality adjusted life years (QALYs) [54] |
 | Self efficacy | Self efficacy scale [55] |
 | Health and social care utilisation | Customised proforma and patient records |
Live-in carer | Carer strain | Modified caregiver strain index [56] (PRIMARY OUTCOME) |
 | General health | General health questionnaire - 12 [57] |
Both | Activities of daily living | Barthel ADL index [58] |
 | Social activities | Frenchay Activities index [59] |
 | Psychological wellbeing | Hospital Anxiety and Depression Scale [60] |
 |  | Yale single item depression screening tool [61] |
 | Generic health related quality of life | Short form - 36 Health Survey [62] |