Question 1: In general, what is your personal view on patient and public involvement (PPI)? | CIs who were interviewed n(%) | Response distribution within CI survey n(%) |
---|---|---|
PPI should always be included in a research study | 12 (57) | 42 (52) |
PPI can be beneficial but is not always necessary | 8 (38) | 35 (43) |
I am not convinced of the benefits of PPI | 1 (5) | 4 (5) |
Question 2*: What motivated you to include PPI in your trial? | ||
I think including PPI is the right thing to do | 15 (76) | 51 (63) |
I have previous experience of the benefits of PPI | 12 (57) | 45 (56) |
PPI was a requirement for research funding | 8 (38) | 38 (47) |
A PPI contributor offered their help | 1 (5) | 4 (5) |
Other | 2 (10) | 9 (11) |
Question 3*: Which PPI contributor/s did you involve? | ||
Patient | 14 (67) | 51 (63) |
Carer | 2 (10) | 14 (17) |
Parent | 2 (10) | 13 (16) |
Charity member | 10 (48) | 24 (30) |
Medical staff | 4 (19) | 11 (14) |
Other | 3 (14) | 10, |